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Showing posts from March, 2015

March 22 Lynch Syndrome Awareness Day

do you have a family history??? Lynch Syndrome Australia Lynch Syndrome Awareness Day 22 March! It's estimated that only 5% of those who have Lynch syndrome have been diagnosed, leaving the rest vulnerable and unaware. Join the dots - different cancers can be connected! Help us to educate and save lives!

"Stronger Than That" Mayo Clinic Video

mayo clinic video to educate about colorectal cancer "Stronger Than That" - Craig Campbell As the official medical and social media partner for Fight Colorectal Cancer’s #StrongArmSelfie awareness campaign, Mayo Clinic produced this video for “Stro...

Lynch family speaks out

Cancer-riddled family speaks out about Lynch syndrome A cancer-riddled family urges Australians to become aware of their own family history to look for signs of a genetic mutation. ABC.NET.AU

Profound effects of genetic testing

http://www.ihavelynchsyndrome.com/genetic-testing-lynch-s…/… Genetic Testing for Lynch Syndrome - I Have Lynch Syndrome Genetic testing is provocative and fascinating; it can hold profound effects for us as it has implications for our human experiences – which are emotionally powerful and charged such as: life, death, reproduction, parenthood, familial bonds, and the meaning of health and illness. It can also provide… IHAVELYNCHSYNDROME.COM

Obesity and Lynch

http://www.ihavelynchsyndrome.com/excuses/ The Implications of Obesity - I Have Lynch Syndrome “Obesity is on its way to replacing tobacco as the number one preventable/modifiable cause of cancer.” IHAVELYNCHSYNDROME.COM

Colon Cancer Facebook Pages to Like

20  ‪#‎ ColonCancer‬  Awareness  ‪#‎ FacebookPages‬  You Need to  ‪#‎ Like‬ http://www.beseengetscreened.com/…/20-colon-cancer-awarenes… 20 Colon Cancer Awareness Facebook Pages You Need to Like Our favorite colon cancer awareness pages from around the web for colon cancer awareness news, images and videos. BESEENGETSCREENED.COM

Why does Genetic Testing Take So Long?

http://www.ihavelynchsyndrome.com/genetic-testing-take-lo…/… Why Does Genetic Testing Take So Long? - I Have Lynch Syndrome Post by Sarah Witherington, genetic counselor extraordinaire… One of the common questions I am asked by patients and other medical professionals is: “Why does it... IHAVELYNCHSYNDROME.COM

10 Things Lynch Syndrome Has Taught Me

http://www.ihavelynchsyndrome.com/10-things-living-lynch-…/… 10 Things Lynch Syndrome Has Taught Me - I Have Lynch Syndrome 1. All deleterious gene mutations are difficult to reconcile. BRCA, Lynch syndrome, Cystic fibrosis, Li-Fraumeni’s, Cowden’s, FAP, etc. While the syndromes differ,... IHAVELYNCHSYNDROME.COM

Hereditary Diffuse Gastric Cancer

http://www.ihavelynchsyndrome.com/mutation-month-heredita…/… Mutation of the Month: Hereditary Diffuse Gastric Cancer - I Have Lynch Syndrome Hereditary Diffuse Gastric Cancer (HDGC) is a syndrome associated with mutations in the CDH1 gene ... IHAVELYNCHSYNDROME.COM

Genetic Testing is Important

http://www.ihavelynchsyndrome.com/10-reasons-genetic-test…/… 10 Reasons Why Genetic Testing is Important - I Have Lynch Syndrome Why genetic testing is important... IHAVELYNCHSYNDROME.COM

Prevention

‪#‎ Lynchsyndrome‬ : New article from @ShewithLynch: Focus on prevention http://blog.preventcancer.org/2014/focus-prevention/  … via @preventcancer Focus on prevention Both of my older brothers had colon cancer; the oldest died at 36 and the other lost his colon at 48. This was when my family learned that we hold the mutation for Lynch syndrome. Lynch syndrome is... BLOG.PREVENTCANCER.ORG

Survivor Guilt

http://www.ihavelynchsyndrome.com/survivor-guilt/… Survivor Guilt - I Have Lynch Syndrome Survivor Guilt… I had lunch with my brother in the cemetery the other day; he was uncharacteristically quiet, he’s not much of a conversationalist these days. I suppose death does that to you. He died 19 years ago from colon cancer due to... IHAVELYNCHSYNDROME.COM

Book Review

http://www.ihavelynchsyndrome.com/book-review-waiting-can…/… Book Review: Waiting for Cancer to Come by Professor Sharlene Hesse-Biber - I Have Lynch Syndrome Waiting for Cancer Come: Women's Experience with Genetic Testing and Medical Decision Making from Breast and Ovarian Cancer is the book I will reviewin ... IHAVELYNCHSYNDROME.COM

Letter to My Gynecologist

http://www.ihavelynchsyndrome.com/letter-gynecologist/… Three and a half years ago I came to you and told you I had been diagnosed with Lynch syndrome,... A Letter to My Gynecologist; 3.5 Years After My Prophylactic Hysterectomy and Oophorectomy IHAVELYNCHSYNDROME.COM

Center for Jewish Genetics

Not just BRCA: Have you heard of Lynch syndrome? | Center for Jewish Genetics Cancer. There are few words as universally saddening and frightening as this one: cancer. Whether the word is describing a diagnosis for... JEWISHGENETICS.ORG

Be Strong

‪#‎ NewBlogPostFromG‬   ‪#‎ BeStrong‬   ‪#‎ Lynchsyndrome‬ http://www.ihavelynchsyndrome.com/bestrong/#.VM-iNVy7nl0 Be Strong Be strong ...Lynch syndrome is an inherited condition that increases your risk of colon cancer and other cancers. Lynch syndrome has historically been known as hereditary nonpolyposis colorectal cancer (HNPCC). A number of inherited... IHAVELYNCHSYNDROME.COM

World Cancer Day

http://www.ihavelynchsyndrome.com/worldcancerday/… #WorldCancerDay - I Have Lynch Syndrome World Cancer Day. Lynch syndrome is hereditary cancer syndrome which is responsible for over a dozen cancers; especially early onset cancers of the colon and rectum. Lynch syndrome also increases the risk of cancer to the: stomach,... IHAVELYNCHSYNDROME.COM

Do You Need a Genetic Counselor?

Article about Lynch Syndrome in this month's issue of Cure Magazine. Do You Need a Genetic Counselor? CURETODAY.COM

March is Colon Cancer Awareness Month ~ Lynch Syndrome Awareness Day

http://www.ihavelynchsyndrome.com/guest-blogger-sam-duckw…/… Guest Blogger, Sam Duckworth - I Have Lynch Syndrome Nobody knows ♪♪♪♪ Da trouble my chromosomes seen ♪♪♪♪ Nobody knows ♪♪♪♪ Da sorrow ♪♪♪♪. Lynch syndrome is hereditary cancer syndrome which is... IHAVELYNCHSYNDROME.COM

An Argument for Genetic Testing

An Argument for  ‪#‎ GeneticTesting‬   http://shar.es/1fKs6S  via @cure_magazine  ‪#‎ Lynchsyndrome‬   ‪#‎ BRCA‬ An Argument for Genetic Testing CURETODAY.COM

The ButtFolio ~ coffee table book for colon cancer awareness

The ButtFolio March 20, 2015 I am always interested in helping and promoting unusual advocacy efforts and with that said, I present to you The ButtFolio …