HNPCC Info

Four and a half stars! I may have to up my postings to up my stars!

Erin Ehrlich posted an announcement to the cause Colon Cancer Alliance . ----------------The Colon Cancer Alliance is excited to provide the Houston seminar online as a webcast! The Houston seminar was conducted in partnership with the University of Texas M.D. Anderson Cancer and moderated by noted journalist and best-selling author, Joan Lunden on Saturday, November 8, 2008. The webcast will provide you with the latest information on colorectal cancer treatment advances from leading healthcare professionals, as well as give you the opportunity to hear answers to questions from survivors and caregivers who were in attendance. For more information about this seminar or to view the webcast, please visit the Houston seminar webcast webpage at: http://www.ccalliance.org/seminars/houston_110808_webcast.html Tell us what you think, take our survey after you view the Houston Seminar Webcast. http://www.ccalliance.org/survey_data/houston08webcast.htm To learn about the 2009 Conversations about...

My one thing is to get the message out to people who say colon cancer runs in my family....if so you need to follow through with your doctor or genetic clinic to be evaluated for hereditary colon cancer. http://www.nursingtimes.net/forums-blogs-ideas-debate/nursing-blogs/all-nurses-need-to-make-one-change-to-improve-patient-safety/5005181.article?referrer=RSS All nurses need to make one change to improve patient safety 14 August, 2009 By Suzette Woodward Suzette Woodward on how to implement just one change to aid patient safety On 3 July the health select committee published the findings of its review into patient safety over the past nine months. While this could be seen as just another report on the subject it sharply reminds us of the things we still need to do to ensure the safety of patients in the NHS. For those of us who work in this field it is an opportunity to raise the profile of patient safety and a reminder of the daunting journey we still have to make. Someone reminded m...

olorectal Cancer Patients Taking Aspirin Live Longer http://bit.ly/8tyRq

Just went to meet my new Gastroenterologist to have my EGD. That is part of the surveillance you need with being a genetic carrier for colon cancer. He was instructed not to refer to me as obese in the history and physical, healthy well nourished pleasant are all suitable......His discretion is very important....... EGD in two weeks..... gave my whole history with the added hypertension, how about one thing at a time.. Good news is that my blood pressure was normal! Yeah!

A good death: Jane Brody’s Guide to the Great Beyond Posted on April 12th, 2009 by Jeanne Hannah in Aging In Place I have just finished reading an extraordinary book, a book so remarkable I am making a list of all of the people with whom I will share it. The book is “Jane Brody’s Guide to the Great Beyond: A Practical Primer to Help You and Your Loved Ones Prepare Medically, Legally, and Emotionally for the End of Life.” Imagine next time you celebrate an occasion, giving your spouse, your child, or children a book about preparation for dying. The idea may seem strange to you. I ask you to suspend your negativity until you’ve seen this book. Most people my age have experienced many losses in their life. For me, those losses have included my grandparents, parents, and my dear sister Kay who died of cancer at the age of 47. Many of the vignettes and insights shared by Jane Brody resonated with me. Brody shared her personal experience of her mother dying in 1958 of complications of ovaria...

She had ovarian cancer five years ago and she had multiple surgeries. Such a strong woman with such courage. She never gave up, she was going to beat this. God Bless her

I am sure you know someone who could share their experience with us?

Wanted people who survived cancer I want to hear their stories. I want to know what went through there minds when they were told they had cancer...... refer your friends and family to this website so they can share. Ivy

This study has identified several variations in the DNA of chromosome 9, which are associated with risk of ovarian cancer. One particular variation called SNP rs3814113 was most strongly associated with risk of ovarian cancer, with the common variant associated with increased risk. As ovarian cancer has symptoms that can be difficult to interpret, cases are often diagnosed at quite an advanced cancer stage when the chances of recovery have become slim. The identification of common ovarian cancer susceptibility genes may offer the potential to identify which women face the greatest risk of the disease and provide them with earlier treatment. While this work is an important early step towards such a goal, genetic screening for ovarian cancer is still likely to be some way off. Where did the story come from? Honglin Song and several colleagues from around the world carried out this research, which was published in the peer-reviewed scientific journal Nature Genetics. The study received ...

NursingTimes Behind the Headlines Ovary cancer genes found : BBC News says that a ‘flawed gene’ has been .. http://bit.ly/QqTkd

Just read a story about one woman's cancer experience. I bet everyone has a story about what goes through your mind when you are told you have cancer. Her thought were about her stunned family members, one crying and the other in shock. I bet there are quite a few stories that could be qualitatively studied. Those experiences could help nurses better help patients during this time.

This is the group that was started on Facebook to bring awareness to HNPCC. Feel free to join this group if you are interested in raising the awareness of genetic colon cancer. We will also be investigating ways to raise funds to help those who can't afford the testing required to diagnose colon cancer.

This article has been published in the most recent edition of the Med Surg Nursing Journal. The article will be attached as a downloadable file in the very near future. This is an article that was a tribute to my mom. Her wish was to have me continue the journey of educating people on this genetic form of cancer. This article is just one more step in that journey.